Your Questions

• September 27, 2024

I have had CML for 14 years.  I feel like I am having loss of memory.  I am turning 60 years old soon. Could this be because of long term treatment?  

- by Rachel K

from USA

• Topics: CML, Long Term Treatment, memory loss, Tyrosine Kinase Inhibitors

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• July 31, 2024

What exactly happens in the body when you develop your immune system? Do you develop more T-cells? Do you develop fewer immature white cells?

- by Lynn M

from USA

• Topics: antibodies, Growth Factors, immune system, intravenous immunoglobulin or IVIG, T-Cells

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• May 30, 2024

What are the risk factors for developing Richter’s Transformation?

- by Janna P

from USA

• Topics: CLL, Cytogenetics, Genetic Factors, IGHV, Richter’s Transformation, Risk Factors

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• March 22, 2024

I have multiple myeloma and I have been treated for it for the last 13 years. What is the latest news on the side effects from CAR T-cell therapy?

- by Elizabeth C

from USA

• Topics: blood cancer treatment, car t-cell therapy, immunotherapy, myeloma, side-effects

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• March 20, 2024

And for the past thirteen years, I have lived with a rare incurable yet highly treatable blood cancer called Waldenstrӧm macroglobulinemia. How do I live in the shadow of incurability?

- by Lisa W

from USA

• Topics: blood cancer, chronic cancer, hope, mental health, Waldenstroms Macroglobulinemia

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• March 20, 2024

Please explain the difference between high grade and low grade lymphoma.

- by Rita S

from USA

• Topics: aggressive lymphoma, blood cancer, indolent lymphoma, non hodgkin's lymphoma, slow growing lymphoma

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• March 1, 2024

How do you find financial assistance grants?

- by Rogina R

from USA

• Topics: blood cancer, copay, financial assistance, information specialists, support resources

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• June 13, 2023

As a CLL survivor, how often should I receive a CAT scan or an MRI. If this is not a standard procedure, how will the doctor know when the cancer has returned?

- by Rene B

from USA

• Topics: active observation, blood count, blood tests, cancer, CAT scan, CLL (chronic lymphocytic leukemia), consultation, hemoglobin (Hb), lymph node, monitoring, MRI (magnetic resonance imaging), physical exam, platelets (PLT), standard of care, standard procedure, symptoms, white blood cell count (WBC count)

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• June 2, 2023

I’m a CLL patient and my question relates to CRISPR, the gene editing tool. How soon with this become a reality in the treatment of leukemia and other blood cancers?

- by Barry G

from USA

• Topics: CAR T Therapy, CLL (Chronic Lymphocytic Leukemia, CRISPR, diffuse large B-cell lymphoma (DLBCL), follicular lymphoma (FL), gene editing tool, genetic therapy, multiple myeloma (MM), mutation, sickle cell disease (SCD), T cells

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• June 1, 2023

Are there supplements, diet, or other activities that can help or hurt my leukemia and boost my immune system?

- by Mark W

from USA

• Topics: cancer, diet, food safety, healthy eating, healthy immune function, immune supportive diet, immune system, immunocompromised, leukemia, nutrients, nutritious diet, oncology dietician, patterns of eating

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• May 10, 2023

I'd like to know what causes TKI withdrawal syndrome and why do some people get it so much worse than others.

- by Tracey F

from USA

• Topics: anti-inflammatories, antihistamines, arthritic symptoms, BCR-ABL, chronic myeloid leukemia (CML), fatigue, inflammatory symptoms, joint pain, KIT, mechanical symptoms, TKI therapy, TKI withdrawal syndrome, treatment free remission (TFR), tyrosine kinase inhibitors (TKI), withdrawal syndrome

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• May 9, 2023

I had a successful transplant 18 months ago. I’ve always been physically active, but I can’t seem to shake related health issues. Will I ever be back to where I was prior to the disease?

- by Beth W

from USA

• Topics: (cGVHD), aldolase, chemotherapy, chronic graft versus host disease, echocardiogram, enzymes, exercise, heart problems, kinase, lung function tests, quality-of-life, skin issues, tachycardia, transplant, weak muscles, weight gain

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• March 10, 2023

I’ve had lymphoma, leukemia, and myeloma diagnoses within my immediate family. Are these diseases connected, and are my family members at elevated risk?

- by Joan C

from USA

• Topics: acute myelomonocytic leukemia (AML NOS), B-cell lymphoma, B-cell malignancies, CLL (chronic lymphocytic leukemia), DLBCL (double-hit BCL-2/MYC), genes, hematological malignancies, hereditary malignancies, Li-Fraumeni Syndrome, lymphoproliferative disorder (LPD), myeloma, non-Hodgkin lymphoma (NHL), POT1 mutation, predisposition, richter’s syndrome (RS), TP53 gene

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• January 24, 2023

When I was diagnosed with acute myeloid leukemia, I was informed I had a gene mutation. How do genetic mutations and chromosomal abnormalities form and how are they able to go back to normal after chemotherapy? Was this gene mutation caused by something I did?

- by Elissa B

from USA

• Topics: acute myeloid leukemia, BRCA2, chemotherapy, chromosomal abnormalities', DDX41 (Dead-Box Helicase 41), DNA, DNA repair genes, GATA2, genetic clock, genetic risk, Genetics, hematological malignancies, inversion 16, molecular, tumor suppressor genes

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• January 6, 2023

Hello, I'm being treated for chronic lymphocytic leukemia and polycythemia. My question is how many people in the United States have both of these? Thank you.

- by Mike B

from USA

• Topics: CLL (chronic lymphocytic leukemia), hematologic clones, incidence ratio, lymphoid disease, lymphoma, malignancies, MPN (myeloproliferative neoplasms), myeloid disease, population-based database, primordial stem cell, PV (polycythemia vera), PV myelofibrosis, SEER (Surveillence-Epidemiology-and-End-Results), thrombocythemia

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• January 6, 2023

After months of chemotherapy, my principal concerns and questions were related to diet and exercise. Can you please provide some advice on the best path moving forward?

- by Thomas G

from USA

• Topics: antioxidants, APL, cancer, cholesterol, diet, excercise, malnutrition, Nutrition, obesity, Plant-based diet, Wellness

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• January 6, 2023

Why are some transplants done with stem cells and other transplants are done with bone marrow? What factors determine the plan?

- by Christine M

from USA

• Topics: aplastic anemia, bone marrow aspiration, bone marrow transplant (BMT), CD34 selection, chronic graft versus host disease (cGVHD), filgrastim, graft vs. host disease (GVHD), Granulocyte-Colony Stimulating Factor (G-CSF), malignant disease, neutrophil recovery, pediatric patients, peripheral blood stem cell transplant, platelets, post-transplant cyclophosphamide, recovery, stem cell transplant (SCT)

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• November 9, 2022

My question is in regards to my induction treatment that has been completed, but the SCT was delayed due to several imbalances in my white blood cells and liver enzymes. What steps can be taken after chemo to correct the body's chemical imbalances?

- by Laura K

from USA

• Topics: Acute Lymphoblastic Leukemia, ALL, asparaginase, blood cell count, blood counts, inotuzumab, SCT, Stem Cell Transplantation, transplant, veno-occlusive disease, VOD

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• November 7, 2022

I have multiple myeloma and the side effects of my condition include neuropathy in my legs. I have been able to relieve the side effects with pantyhose. How effective are pantyhose for cancer?

- by David Z

from USA

• Topics: compression, multiple myeloma, neuropathy, pantyhose, peripheral neuropathy, preventive strategies, side effects

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• May 20, 2022

My three year old son is in his second year of remission from acute myeloid leukemia. My question is, how likely is it for his sibling to also be diagnosed in the future?

- by Molly C

from USA

• Topics: Genetics, Heredity

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• May 17, 2022

Does acupuncture provide any benefits to patients that are suffering from blood cancers and disorders?

- by Kelly D

from USA

• Topics: Acupuncture

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• May 17, 2022

Why do you develop new health problems that affect your quality of life? That are a likely outgrowth of deficiencies in your immune system? For example, digestive problems or severe allergies?

- by Monica B

from USA

• Topics: Health Problems, immune system, Quality of Life

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